Sunday, September 13, 2009

Cystic Fibrosis

Nathan, Trish and Gweneth (born just weeks before Trish had a double lung transplant).

CF doesn't get the press that MS or cancer gets. Most people don't even know what it is. They're working on that. Here are a few supporting souls. They had a list of sponsers two pages long. I thought that was great!

(Trish and Nathan speaking just before the CF Walk)

Saturday we went back to The Beach to participate in a fund raiser for Cystic Fibrosis research. A good friend of ours at our old church was born with this disease. Trish has a powerful story to tell - Please visit their blog, she and her husband, Nathan (the music minister at church) have a beautiful story and a beautiful family. The Lord has done mind blowing miracles in their lives and their lives have touched millions (literally) around the word. Trish has lived (in every since of the word) with this disease and is doing all she can to help with the fund raising and awareness raising as well.

Cystic fibrosis is a disease that causes mucus in the body to become thick and sticky. This glue-like mucus builds up and causes problems in many of the body's organs, especially the lungs and the pancreas. People who have cystic fibrosis can have serious breathing problems and lung disease. They can also have problems with nutrition, digestion, growth, and development. There is no cure for cystic fibrosis and the disease generally gets worse over time.
The life expectancy for people with cystic fibrosis has been steadily increasing over the past 40 years. On average, people who have cystic fibrosis live into their mid-to-late 30s, although new treatments are making it possible for some people to live into their 40s and longer.

1 comment:

Della said...

It's a bit surreal to switch from one blog to the next on Google reader and have it seem you didn't switch, because there are the smiling faces from the last blog. LOL

I clicked over from cfhusband to you and had that experience just now.